...But one thing they don't tell you about the blues when you got em
You keep on falling cause there ain't no bottom
There ain't no end.
At least not for Lillian...
A controversial topic here, and I’m not taking sides one way or the other.
Who out there can claim a significant increase in quality of life based on the use of atypical antipsychotics? Atypical antipsychotics include the following medications:
Clozapine (Clozaril)
Risperidone (Risperdal)
Olanzapine (Zyprexa)
Quetiapine (Seroquel)
Ziprasidone (Geodon)
Aripiprazole (Abilify)
Paliperidone (Invega)
Sertindole (Serlect)
Zotepine
Amisulpride
Melperone
Almost all of us can point to negative affects from these medications. Weight gain, long-term health issues such as diabetes or thyroid problems, trembling hands, involuntary muscle movements, and other side effects. But I’m wondering if positive stories outweigh negative where atypicals are concerned.
Next, and don’t bite my head off here, if you need atypicals for occasional relief from anxiety, stress, or mania, would something else, perhaps even marijuana, give any temporary relief?
Next, are you on one of the bipolar disorder maintenance medications? I only know of 2 meds approved by the FDA for maintenance of bipolar disorder, Lithium and Lamictal. If you are not on one of these maintenance meds, is there a reason? Would they, perhaps, be ineffective against the particular flavor of bipolar disorder you have?
Please don’t think this will be used as a condemnation of psych meds, most of you know me better than that. I am truly interested in the responses, and plan to write about these responses, whichever side they fall on.
I would appreciate if you would fill out the polls then leave a comment with your honest response. I’m not interested in a laundry list of the meds you’ve been on, most of us have a long list. I’m interested in whether or not you’ve taken atypicals, and what atypicals have made an actual improvement in your quality of life. Don’t hesitate to answer anonymously if you would rather not be recognized. And please pass this link along to others so they can add their responses. It would be great to have a large number of responses so we can all benefit from this information.
Update: I've moved the polls to the right sidebar
Mom, Interrupted at Mercurial Mind Bipolar Blog talks about forecasting a mood swing by our voice and tone. She hit the nail on the head, based on this a change is coming for me. My wife mentioned it to me last night, I’ve been mouthy and sarcastic. Stay tuned, let’s see where this leads…
On a related note, I’ve left some biting and sarcastic comments on some of your blogs. They are not meant to be critical to the blogger who made the post, sorry if they sound that way.
We bought a new bike for my wife the other day. A very nice fitness/hybrid bike by Gary Fisher/Trek. She’s excited to ride, and it looks like she’ll be able to keep up with us now. For anyone who likes to bike, the difference between a Wal-Mart bike and a bike shop bike is HUGE.
Does anyone know if it’s possible to dynamically order a blogroll by clicks or popularity? Now that I ask this, I hear txandi saying "blog tweaks: as addictive as crystal meth."
I was listening to NPR the other day, actually, I listen to NPR every day, but the other day I heard an interview with a guy that wrote a book about understanding philosophy through jokes. It was one of the funniest things I’ve ever heard. Things like:
"3 ladies were sitting on a park bench. The first lady says "oy!" The second lady says "oy!" The third lady says "enough about the children already."
Or:
"The invisible man walks into a doctor’s office without an appointment. The nurse says ‘The doctor can’t see you now’"
I’ll let you know if the book is as good as I think it will be.
Everyone have a great weekend!
Thanks to those who sent emails recently. I'm OK, just haven’t been able to post or respond to comments, mainly due to stresses at work and home. Something about stress bottles up my motivation and creativity.
By necessity most of my time and efforts lately have been going to BipolarConnect. When you only have so much time, creativity, and energy, the deadlines there take priority. I have had a couple more posts published on HealthCentral’s BipolarConnect site. You can see them here and here. The last link will accept comments, if you get a chance jump on over and leave a comment. That helps me, and my boss at HealthCentral, a lot.
I hope everyone is doing well, and I’ll post back when I have enough motivation to move after work. In the meantime, if anyone is in crisis out there, somebody drop me an email and tell me who, so I can at least tell them I'm thinking of them.
I was asked what I'm looking to accomplish with the LivingBipolar site. The answer - I'm not really sure.
I started out wanting a way to quickly read through a long list of blogs. This it accomplishes very well.
Then, I added a little design to it.
Then, I decided to add news and resources to it. Once again, it works well.
Now, I stll have a hypomania going on with creative energy to spare and I'm thinking of other improvements I can make. When I was at work the other day I pulled up the site, saw the history entry and the title, and I realized I was showing my employer that I was visiting a site called "Living Bipolar". That's when I started thinking about a site without the word "bipolar" in the title.
And a little clarification. BipolarConnect is a major global health care website, a competitor of sites like WebMD. They invited me to be an "expert patient" on that site, and write regular columns for them. I'm honored to be a part of that, and don't want to do anything that could be considered a conflict of interest.
So hopefully that's a little clarification.
On the LivingBipolar site, I don’t see enough benefit – yet. I’d like to increase the benefit without duplicating the ideas of sites like HealthCentral’s BipolarConnect, which might be a conflict of interest given my relationship with Bipolar Connect. One of my primary purposes in building the site, besides an outlet for my hypomania, is to increase traffic to all of our blogs. The thinking being if we could bring in people who might not take the time to seek out our individual blogs, "click-throughs" to our blogs would result.
Here’s thoughts of a rough "to do" list at this time:
A mirror site where the name does not include "bipolar" so our browser history does not show "bipolar". This might be good for work or public computers.I’m always open to ideas or suggestions.
A bipolar wiki of some sort.
An open group blog where anyone can post.
Displaying blog comments from within the site (but you’d have to click-through to make a comment)
A message board or chat room.
I don’t like to get political on this blog, but today's headlines are just too inviting. I’m not going to publish a stance one way or another, but I may comment:
Obama’s My Space Controversy
US Soldiers Can’t Blog or Email Without Approval
"Mother Hen, this is the rooster. I am in the sandbox. I repeat..."
Joan Baez Banned By Walter Reed Hospital
Who says the public has a short memory?
FDA Seeks Anti Depressant Warning
We’ve known it was coming…
Vatican Calls Comedian's Verbal Attack On Pope 'Terrorism'
This Italian comedian will REALLY be heckled.
Rally Ends With Clash Between Marchers, Police
"There is evidence that officers knocked reporters to the ground, used batons on photographers and damaged cameras, possibly motivated by anger over journalists photographing efforts by officers to control the movements of marchers," an RTNA (Radio and Television News Association of Southern California) statement said.And video.
"Digg deleted my hard drive for posting the HD-DVD KEY! Now my hard drive refuses to write in binary. I get Error Code: 09-F9-11-02-9D-74-E3-5B-D8-41-56-C5-63-56-88-C0 . Oh, noz."
My current hypomania has hit critical mass. I’m getting in great, intense, workouts, but I can’t sleep unmedicated. I’m hoping things are on the downward slide just a bit. I just hope it doesn’t go too far or too fast.
I am continuing to work on the LivingBipolar page. I love working on stuff like that, if feeds so many needs in me. Creativity, technical thinking, research, and so forth. I’ve expanded it to include news feeds and resources. I’ll be adding a link library next. Is there anything else that would make it more useful?
Kyle will be moving back in with us. I’ve just written a column about this at BipolarConnect, but it will take a week or so for them to print it. You can subscribe to my posts if you take a moment and create an account. It will be great to have him home, but I’m nervous about it. We’ve butted heads terribly in the past.
All my life I just assumed I’d never hit 65 years, thinking with my lifestyle I’d heart attack early. Now I have every intention of being active into my eighties. A book that I’d almost call life-changing is called "Younger Next Year" by Chris Crowley and Henry S. Lodge. There is a men’s and women’s version of the book. If you need motivation to get your exercise and fitness regime going, this is the book. My workouts are working, I’ve lost 20 pounds, gained size and strength, and ran 4 miles Wednesday morning. Those of us in the bipolar disorder community have to be SO careful. Our meds, while necessary for our ability to live semi-normal lives, can also exact a price. This helps counteract that price.
Did anyone watch "The Office" last night? Could there be a funnier show? A disgruntled employee sabotaged an entire shipment of paper by putting on a watermark of 2 cartoon characters in an obscene act. This paper shipped to businesses, schools, and other organizations. One of the funniest episodes ever.
I hope everyone had a great week, and will have an even better weekend!
I’ve been asked a few questions on the feed reader I built. If you’re not into technical stuff, you don’t need to read this post. Except for the bolded text below, that’s some good information. But I live for projects like this – they keep me sane. This was a short one, just a few days. But I really need to focus and immerse myself into things like this, it’s important to my mental health.
First, a quick, high-level overview. I knew very little about feeds prior to starting this project, and I still know little about the technical side of them. All I can say is it provides a quick and simple data stream you can pull into a “reader” and display. This data may be news, basic web pages, or in this case, blogs. You may have noticed links on blogs, they may say "RSS" or "Feeds" or ""Atom". These are all methods of providing feeds for our blogs or web pages. People use these feeds in different ways, the way I used them is described above.
There are a lot of feed readers, Google Reader is a popular one. I use Google to display the news headlines on the side bar of this blog. But there are so many ways to use feeds and readers you need to look around for one that does what you want, or can be modified to do what you want. In my case, the tricky part was displaying multiple feeds in a single interface. It took me a lot of research to figure out how to do this. Somebody else may have been able to do it in minutes, but it was a learning adventure for me.
Jumping to the solution, I took all the individual feeds and combined them into an OPML file. This is a file that combines multiple feeds. I found a site that will do that for you:
http://www.feedshow.com/goodies/opml/OPMLBuilder-create-opml-from-rss-list.php
Once you have the OPML file built from your feeds, then go to Grazr and use that OPML file to build a reader widget:
http://www.grazr.com/config.html
You can configure your reader in a number of different formats or colors, and Grazr will do that for you. Once it’s configured it gives you the code to paste into your blog or webpage. That’s the basics, and it does work. Just maintain a list of feed URLs and use the method above.
But now the fun part, tweaking it to make it really usable and easily updated. If it takes too much time or it’s too much work to update, it will never be used. A few things about that process.
First, if you’re still maintaining links yourself, stop that! There are several good, free services that make it so much easier to maintain a list of blog links. And they add so much versatility to future projects just like this one. I use blogrolling, but there are several out there. Build your blogroll, they guide you right through the process. Then you can generate the code for your blog. Don’t stop reading when I say code! Go to Blogger, Layout, and add a page element. Select HTML/Java Script and paste in your code. Drag the page element where you want it, and you’re done managing links in Blogger forever. For the ultimate in ease, add a toolbar button to your browser that you merely click to add a link to your blog. Blogrolling will show you how to do that also. OK, those not desiring additional tech information can stop reading now. But the point of this sidebar, If you have a place you can upload and store an OPML file online, and if you create a blogroll of feeds, you’ve cut way back on your maintenance time. Once you have a blogroll of feeds (not basic urls), you can export that blogroll to an OPML file. Blogrolling calls it "backing up", but it’s the same thing. With Blogrolling I have to manually edit that OPML file a bit. On each line you change:
type="link"
to:
type="rss"
and :
url=
to:
xmlUrl
In your html or text editor you just do a replace with the information above, and it’s done in a second, even if you have hundreds of feeds. Then you have a working OPML file.
Note to Suni: If you add a title to the feed when adding it to blogrolling, the title pulls into the feed. Otherwise you can manually edit the OPML file to add the blog title in the “text” portion of the feed line. But I don’t know how to tell you to do that unless you are storing your own OPML file. I don’t think the feedshow link above does that for you.
Then, as described above, use the grazr widget builder to build your widget using the url of the OPML file you’ve built. If you want to change anything, you merely change the OPML file you have stored, and the changes immediately pull into your feed reader.
Clear as mud, huh?
Oh, and the design is a template I downloaded and slightly customized. I don’t have the patience to set up the CSS to do design from ground up. I’m still adding to and tweaking the basic site.
Next step: Adding different feed readers for resources, and maybe other categories as well. Also, the email for updated blogs as described in the previous post.
Any suggestions anyone may have? I’d like to hear other ideas and suggestions.
I've been playing around with feeds, and came up with this. Check it out:
Feed Reader
Think about it - how much all our traffic could increase if people could go to one location to see an entire blogroll of blogs? If they see something they like they click through to the blog. This isn't perfect, I'd like to display blog titles instead of just URLs, and I can't figure out why it displays some URLs and not others, some pictures, and so forth.
Next - a daily email showing all updated blogs that people can opt-in to receive. This opens things up to people who may be intimidated by navigating their way to blogs.
Thoughts?
I haven't slept normally for weeks now. I get about 4 hours a night - the length of time my Ambien seems to work. Unassisted, I'd be up for days. This crash may be a tough one...
Foolishly, years ago I cashed in all of my life insurance when I purchased a business. I needed money badly, and I could always purchase later, right? Well, later is now. Since then, however, I've been diagnosed with bipolar disorder, and things have changed.
I'm looking for any information I can get. I spent an hour Googling the topic, and find very little information. I saw one site that said it's possible to get coverage if you're stable and med compliant. But how do they verify that? Do you roll the dice and see if I'm approved? If I apply with one company and am denied, that is a factor with other companies. It's a question on applications, if you've been denied.
Does anyone have experience with this? Or any ideas where to look for more information?
I just received a copy of Tom Wootton's book "The Bipolar Advantage". Before I could even open it my wife snatched if from me and began to read it. To make things worse, she started reading me quotes. She finished it, and I have finally claimed it. This is a great book, and I recommend it to all.
Thanks to the author, and to Jane, for bringing this to the bipolar community.
I'm loving this embedded music stuff, so I'm going to indulge myself again.
After 2 slower, subtle, introspective songs, it's time for in-your-face.
"Cracker" is one of my favorite bands, and "Kerosene Hat" is probably my favorite Cracker album. You'd all recognize songs off the album, "Low", "Get Off This", and "Euro-Trash Girl" are well known. This song is anything but subtle, and it's what I need today to kickstart myself back into the mainstream.
I'm home sick today with stomach flu. It's been over 10 years since I've had this stuff, and I hope it's at LEAST another 10.
Somebody asked me about posting songs in blogger, like I did a few posts ago. It's pretty simple, but takes another membership.
Mog.com is a music blog that allows you to upload songs or videos. It's a free account, and an interesting community. Very easy to signup and navigate. You upload your mp3, and it embeds a player in your post. You then click "Share" in your post, and it gives you the code you can paste into Blogger. Pretty simple.
Today I'll share another one of my favorites. Another slower, insightful song by one of my favorite singer-songwriters named Paul Thorn. If you're a baby-boomer this song may just strike a chord with you like it did with me.
ariadneK, Ph.D. from Weird Cake has nominated me for a Thinking Blogger Award. Under the terms of this award I need to list 5 blogs that make me think.
I'm flattered, but to list only 5 blogs means I'll leave out 40 plus - all the rest of the links in my blogroll. I truly don't want any of my friends left out. So let's see what I can figure out...
First is a new (to me) blogger: Soulful Sepulcher. Check out Stephany's blog and tell her I sent you.
Next has to be Anonymous Mom at Tenuous At Best. She is struggling through so much of what my wife and I did with Kyle. It brings back memories, some positive, some negative.
Third would be a big-name blogger Liz Spikol at The Trouble With Spikol. A thought provoking blog.
Fourth would be psychiatric professional, Charlie, at Symptom Space. Some great information to be found there.
Final would be Anxiety, Addiction and Depression Treatments. Another site with excellent, professional, information.
For those nominated, if you want to participate, nominate 5 bloggers, link to the originator's post, and proudly display the Thinking Blogger certificate.
I've posted many times about BipolarConnect.com, a community built around bipolar disorder. I've been blogging there for about a year, my shareposts can be found at GJ Gregory's Shareposts. I go by GJ there, as there was already a John posting there, the well known bipolar activist John McManamy.
This is very cool way to interact with others, much like we do in the blog world. But unlike the blog world, no technical knowledge is needed. The community is very easy to explore, and very accessible. I encourage everyone to hop on over there, register, create a profile, and participate. If nothing else, leave a comment and let them know you're reading my posts.
For those afflicted with bipolar disorder, or those touched by it in any way, an active community awaits.
Would an annual "convention" of bipolar disorder bloggers be feasible or desirable? A way we could get together socially, therapeutically, and professionally? Maggs (I think), used to host a get-together a couple of years ago, and it sounds like they had fun.
Actually, "convention" implies a very structured event, and I don’t envision that, at least at this point. "Get-together" implies a very loose event, and I don’t envision that either. I’d like a way to bring people together, for a day or two at the most, with enough structure to keep people from staring at each other all day, but enough free time so we can get to know each other. I would envision round-tables on important topics, workshops, support groups, and perhaps even speakers. All put together by us, using our talents and resources.
This could be an aggressive, structured undertaking, or it could be a handwritten agenda in a spiral notebook. It all depends on how many of us are interested. If there’s 6 people interested, we get together in a motel coffee shop at a central location we can agree on. If there’s a hundred interested, we look for a hotel with a meeting room. This wouldn’t be limited to bipolar bloggers, I know we have hundreds of people out there that read our blogs and never comment. We have caregivers, health professionals, social workers. Anyone would be encouraged to come. If we get enough people we’ll attract corporate attention and sponsorship assistance.
Now I know what you’re all thinking, and yes, I am hypomanic. But this sounds like something that would not only be fun, but helpful as well.
Thoughts?
