Thursday, July 19, 2007

Great News!

After years of struggling, jumping through hoops, waiting in lines, and dismal failures, my son Kyle got medication! My wife has been taking him through a series of assistance appointments for several years. You miss one appointment and you're back to square one. The process is so frustrating, and so intimidating, and so daunting, that he never was able to make it through. Finally today after having someone criticize Kyle for a paperwork mistake another aid worker made that would set them back several months, my wife broke down in tears. They finally saw the hell he'd been through in trying to get assistance. The person stepped up and went to bat for Kyle, and got him in for a psych eval and other med work that same day.

He just called me, and was excited. He felt really good about the appointment, and they prescribed him Lamictal and Seroquel! I never thought he'd be prescribed Lamictal through the public assistance process because of the cost. He knows how well it's working for me, and he's excited about the future.

I'm so happy for him, I'm almost in tears right now.

10 comments:

Lee Harris said...

Yes, that is great news! Best Wishes for you and yours.

Jon said...

Thanks, Lee!

KansasSunflower said...

Lamictal and Seroquel - great combo! I'm so happy for you and Kyle!!!

anonymous mom said...

great news, jon! you all must be so relieved. i've heard that's a great combo too - i hope kyle finds it helpful.

Jon said...

Thanks all. It's the same thing I take, that's why they prescribed it. The pDoc said since it's working for me it would be a logical place to start. The seroquel is just for mania, which is when I take it, not every day. He was also prescribed Trazodone for insomnia, which I've heard positive things about.

Stephany said...

Trazedone is an anti depressant that I had trouble with, it caused severe sweating and insomnia worsened. Just a head's up anecdotal.

Jon said...

Stephany - thanks for your input. He took the trazedone last night and it put him to sleep, but he was up every few hours.

Stephany said...

Re: the trazedone. I was on 50mg to start w/ and it never helped. Increased it to 100mg and I was still up all night. After 6 years I asked myself why I was still on it and removed it. Once it was gone, is when I slept better and realized my sweating was not hot flashes! I used Seroquel and that stopped the racing mind, but didnt work for sleep. What I am on now is Lamictal and PRN Xanax for sleep.[1mg daily, + 1mg more if bad insomnia].
Anyway, we all know it all works different for everyone, and just thought I'd give a few anecdotal stories.
I also understand that big hoop it is to jump through to attain services, I have mountains of paperwork re: my daughter. It's insane.

marja said...

Hi Jon,

I've visited here before but don't think I've left a comment before. This time I thought I would because I see you mention seroquel here. A couple of acquaintances are having problems with this drug, feeling suicidal in the morning. They blame the seroquel. Have you heard of anything like this?

Please see my blog where I posted about this tonight.

jane said...

Congratulations Jon! I'm so happy for Kyle. This has been a long time coming.

I couldn't take Lamictal, but different things work for each of us. What did work for me also worked for Levi, when he was on meds. Hopefully, the same is true for you & Kyle.